Congenital Heart Defects: Legislative Victories!

If you read this blog, you know about my support of the American Heart Association and my personal experience with heart issues. Today I got this great e-mail from the ACHA in my inbox and I want to share this with you.

Dear ACHA supporter:

We did it!

Thanks to the hundreds of letters, e-mails, and congressional visits made by people like you, both the House and Senate included calls for ACHD funding in the first version of the 2008 budget. To view the full House and Senate bills, click here (House) and here (Senate).

House:
Congenital heart disease -The Committee recognizes that congenital heart disease is a chronic disease affecting approximately 1.8 million Americans. It commends NHLBI for convening a working group to address this issue, and supports its recommendation that action be taken to prevent needless disability and premature mortality in this rapidly-growing population. The Committee urges NHLBI to work with patient associations and other appropriate public health organizations to develop education and research initiatives targeted to the life-long needs of congenital heart disease survivors.

Senate:
Congenital Heart Disease -The Committee commends the NHLBI for convening a working group to address congenital heart diseases, and supports its recommendation that action be taken to prevent needless disability and premature mortality. The Committee urges the NHLBI to work with patient associations, other appropriate NIH Institutes, and the CDC to develop education and research initiatives targeted to the life-long needs of congenital heart defect survivors.

So what’s the next step?
Over the next five months, Congress will work to create and vote on a final 2008 budget bill. We want this call for ACHD funding to make it all the way into the final budget. Once this happens, Congress will then ask federal health and research agencies to tell them how they have responded to this call for action.

So what do we need from you?
Please write or email your members of Congress to let them know why federal support for CHD survivors is important to you. The goal is to make your lawmakers aware of the call for ACHD funding in the budget and to urge their support for CHD survivors.

Think writing a letter won’t make a difference? Think again! Research shows it takes only 10 contacts to make a legislator pay attention to a piece of legislation!

Need some help getting started? Three sample letters and letter-writing tips can be found here.

Find your lawmakers by visiting www.house.gov and www.senate.gov. After you have found your lawmakers, follow the link to their individual web pages. You will find all mailing and email addresses here.

With your help, we can take this all the way!

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